Monday, June 4, 2012

Noah has a brain tumor - part 1


On Monday April 23rd, 2012 my day seemed very normal; I stayed at home with a sick Sydney but had a great day because we snuggled and played most of the day. But after Noah's school day he had to go get an eye glasses check up, which that appointment changed my life forever.

Lets start back a year earlier, he was in kindergarden and he failed his eye test, therefore, with his mom having all her eye troubles we sent him to an optometrist. Where they said there was some eye change but not enough for glasses and to come back in each year for annual checkups. That brings us into February of 2012. Where there was enough eye change to warrant glasses. He then got his glasses in march. Shortly after that he started getting headaches. Then 3 or 4 times he got severe headaches where it would knock him out for 13 hours straight. He had headaches any time of the day, but no other symptoms. Tiffany got concerned and took him to the local pediatricians, where they noticed a sinus infection and said there shouldn't be any concerns but we should follow up with a neurologist. We choose Penn state Hershey, but the first available appointment was in august.

That brings us to that Monday appointment. Sydney, Noah and I went to his appointment. Sydney was a trooper, Noah was even better. After the eye docs looked over him they mentioned there is a small change in vision. Where in turn I describe the headaches he has been having. The group then looks deeper into him, first with out eye drops, then with dialiting drops. We want to run more tests they say. With moms history, I am not concerned. After the tests they describe the optical nerves are swollen. And we should follow up with a nurologist. I described we have an appointment in august, "No, no,it has to be sooner" Dr. Talone said. We will get you an appointment tomorrow. Again I'm worried but not overly concerned. We leave the appointment have our normal busy life. But our stomaches drop when Dr. Talone called and said he has been working with a nurologist and Noah needed to go to the E.R as soon as possible. Tiffany took him up, and at midnight I got the dreaded call.

Noah has a mass in his head. Approximately 8cm by 4cm is this growth. This is at 11.45pm. Sydney is sleeping. Luckily we moved home, tiff's aunt came over and stayed with Sydney. Myself and my mom rushed to the hospital. I couldn't stop crying. By the time nanny and me made it to the hospital they gave a better diagnosis. Mount nittany hospital crew described it horribly now that we know more. They gave us a false hope. But it gave us enough hope to sleep some hours that night. Also, mom described to me how well of a trooper Noah has been. He laid still for an hour with out sedation in the MRI. He got an IV no problem. An he laid their sleeping while I weeped over him. We were free to go knowing that we would receive a call in the morning, by noon, from Penn state Hershey.

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