Monday, June 4, 2012

Noah has a brain tumor - part 3


The next day, April 25th, Noah kind of slept in, but woke up very cheery.  He immediately wanted to play with me, I believe we tried to play Lego Batman on the XBox.  But on this day his mental challenge pre-surgery was the greatest, he had to fast (cannot eat or drink) while on steroids.  His 3 hour MRI test was scheduled for the morning so they requested he had nothing after midnight, but it got pushed back until after 1 o'clock.  By that time of day and them pushing pretty high dosages of steroids he was starving and letting us know.  One of the phrases he probably won't live down is that he was "100% hungry".  But overall he handled it very well in the condition he was in.  He also had a break down because he wanted to make a key-chain at the child life, but his MRI was going to interfere with making the key-chain.  But thankfully the volunteers brought the stuff to Noah's room to make the key-chain.

While Noah was in his MRI, we had 2 special visitors come to Noah's room.  It was the Executive officer, and chief executive nurse, they came down because Senator Corman made a phone call.  Senator Corman's sons played on Noah's football team that I helped coach.  I felt humbled that someone would use their professional power to make sure we were getting the best care the hospital could provide.

So as soon as he was done with the MRI he was able to decorate his key-chain and magnet, and the following day before his surgery he was able to make it into the magnet and key-chain one-on-one with the volunteer.  Also after his MRI, he was so hungry he ate most of his supper.  And had no problems with nausea.
By dinner time, the world new about Noah and our troubles, facebook.com is a great means to get knowledge out and have a faithful following for something serous as this was.  But it had a great impact on one of Noah's cousins (and good friend).  Lauren Benner earlier that day was told by her mom (Sue) the details that Noah was going through and during school Lauren became emotional on Noah's situation.  Lauren's parents thought it would be a great idea for Lauren to see Noah - and for Noah to see Lauren.  They were right, it was a great success, not only did it help Lauren out, but it helped Noah too.  It was great to see Noah as a typical 7 year old boy in the Hospital.

But again Noah had to fast beginning at Midnight because his surgery was scheduled for noon on Thursday April 26th.  So Wednesday night Noah stayed up later having snack after snack and ending it with a slice of pizza.  But before I left to go to the Ronald McDonald house, Noah had his first true breakdown; he started crying about not wanting to look stupid, he didn't want a scar on his head.  Tiff and I tried to calm him down but it took a good 45 minutes before he did.

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